Representation

If you stepĀ in the logical flaw rabbit hole

of proclaiming to represent

ALL PEOPLE WITH DIABETES!!!!!,

then the least you can do is

own it.

 

Was your six-figure “non-profit executive” salary there

to represent Shane Patrick Boyle

when Go Fund Me fell fifty dollars short?

 

Have you ever seen a human being in DKA,

breathing labored, blood poisoned?

Would you look her in the eye

and still have the audacity to suggest,

“This could all be easier

if you just took the bus to Walmart,

bought cheap insulin there,

took a wild guess at a 3:52 am dose

of one of the most powerful Rx’s on earth.”

 

Her breathing is labored.

Her blood is poisoned.

There is no more room on this bus.

 

I’ve written long enough

to know that I, too,

have made mistakes.

The ‘disease warrior’ metaphors

The representation claims

Forgetting to check my privilege

at the coat rack

Running my mouth too loudly

to listen

 

How can we pretend to represent

all people with diabetes

when we have strong Wi-Fi connections

the acquired ability to read and write

the color of the skin we were born with

the restocked fridge,

while so many of our diabetes brothers and sisters

are dying slowly and painfully

without access to the prescribed air

we breathe?

 

Our stories are the only ones we can tell fully.

To say otherwise is to snuff out others’ lights

which have already borne enough pain.

 

There has to be a better way

to make room on this bus.